Showing posts with label autonomy. Show all posts
Showing posts with label autonomy. Show all posts

Friday, 20 September 2013

The centre and the periphery: patient-centred care and the concrete individual

Note: This post was written a few weeks ago, in part intended to advertise the CleanMed Europe 2013 conference that took place over the past few days. Through an abject failure on my part to do anything about posting it anywhere, that never happened. But I thought I might post it here anyway.

Thanks to Izzy Braithwaite for her probably-in-vain attempts to make it slightly more readable; that it's still incomprehensible
is solely my fault.

Would anyone dispute that healthcare systems ought to put their patients first?  The mantra has a near-unassailable status in discussions of the best foundations for healthcare.  The UK’s General Medical Council makes it first amongst the Duties of a Doctor; it provides the title of the Department of Health’s response to the findings of the Francis Report; and it lies (in its more-theorised form, ‘patient-centred care’) at the core of Don Berwick’s recent report into safety in the NHS.  No politician, of any political stripe, would see fit to enter into a debate on health without it taking pride of place in their rhetoric.  I’ve used it myself, campaigning for the priority of “patients before profits”.  Nonetheless, I’ve long had qualms about it.  It took a work of fantasy to figure out exactly why.
During a recent and all-too-brief summer break, I decided to read China MiĆ©ville’s Perdido Street Station. I had harboured the vague intent of doing so for several years,  but a fortuitous alignment of stars and an inability to access any of the books I was supposed to read  in the university library meant I finally did.  As a (somewhat lapsed) devotee of speculative fiction, I’d always expected to find more than simple escapism between its covers; however, I did not expect it to form the nucleus around which those nagging worries about patient-centred care would crystallise.